Jem & Minou Transplant poem
Saturday 10th Aug
Our Transplant Poem
Please excuse the pause, I take before I speak,
When you inquire, how life's been this week.
It's a little complicated, and I'm not sure what to say.
Two worlds have collided- there's a lot to convey.
My child's just had a stem cell transplant, yes, I'd not heard of one either.
Until our consultant explained it'd be a life-saving procedure
It's not a guarantee- "there's many dangers", he said,
But we took that chance in a heart beat, to try and give them a life ahead.
So we found ourselves living in a temporary new home.
A clinical environment where you often feel alone.
Distanced from normality, and confined to a small space.
Where the medical world and parenthood, would come face to face.
Some transplant battles are obvious, It's etched on our child's face.
The swollen skin, rashes and hair loss become common place.
Yet a deeper battle is happening, in the brave human you see,
It's an internal struggle, that we hope leads to victory.
But for now as chemo rages. Donor cells explore new terrain.
Protective isolation and restrictions bring temporary refrain.
The constant beep of pumps, with drugs to keep you alive,
The sparse room you're bed bound in, the venue to survive.
The furrowed brow of the doctor, as they make their daily round
Countless factors and risks- many unknowns abound.
Yes this season is hard and the weight of concern is great
But we continue to persevere, in the pursuit of a healthier state.
Dramas are definitely present, but reader please do know
That joy can be found, if you're willing to let it grow
It does not need expense, nor a perfect time or place
Even on an cancer ward, joy can be embraced.
It's found in little pleasures, scattered throughout the day,
You'll find it's often discovered in the simplest of ways.
It's the cuddles with your child, watching movies on repeat.
It's the little dance they do to the TV's musical beats
It's with fellow transplant parents, who know how you feel.
And in those late night moments, when you can finally eat your meal
It's in the snippets of normality- when the days have no end
When joy comes from a phone call, or a quick coffee with a friend.
It's a kind word from a nurse, a shared joke with the cleaner,
As you recognize these moments, it changes your demeanor.
Sure sadness is often there. Fear has it's place too.
But with joy noticed throughout the day, you're able to make it through.
It's the joy you see as blood counts, start to increase.
Little milestones are met and restrictions decrease
Seeing strength return with each wobbly step.
Disconnected from the pumps- the start of 'going home' prep
As home time approaches, its daunting to know,
That this new chapter of life, is now ready to go.
With rules and regulations, still heavily in place
This new normal, feels too scary to embrace.
How will normality and the clinical intertwine?
Will they both work, and somehow align?
But when fear creeps in, during this new stage
I'll keep holding onto joy as I turn the next page.
Share